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Statewide Traumatic Brain Injury
Surveillance Programs
(Source:
http://www.cdc.gov/ncipc/res-opps/headinjy.htm)
Program
Description: The purposes
of the system are to evaluate trauma patient care and to plan injury prevention
programs. The Alaska Traumatic Brain Injury (TBI) Surveillance System provides
timely and accurate population-based data on the incidence, cause and severity
of all hospitalized and fatal non-hospitalized traumatic brain injuries in the
state. The data are used to identify high-risk groups and activities, to follow
trends in incidence, and to develop and evaluate injury prevention programs and
policies.
Case
Definition:
Traumatic
Brain Injury: CDC case
definition.
Spinal Cord
Injury: Currently not
conducting SCI surveillance.
State
Requirement for TBI/SCI Reporting: There is no state requirement mandating TBI or SCI case reporting.
Major Sources
of Data: The major
sources of data include the Alaska Trauma Registry and death certificates. In
addition, information is obtained from medical records, the Alaska Department
of Transportation and Public Facilities, the Alaska Department of Public Safety,
the Alaska Division of Medical Assistance (Medicaid data), and health care
providers likely to see persons with TBI. All hospitals in
Last Year for
Which Data are Available: 1997
Data
Dissemination: The data
are available to hospitals and ambulance services for quality of care review;
to EMT instructors for training; to health officials for injury prevention
planning and upon request.
Publication:
Traumatic Brain Injury in
Referral of
Surveillance Cases to Services: Surveillance data are not used to make referrals for services.
Contact
Person:
Diane Sallee, M.S.
Community Health and Emergency Medical Services
Alaska Department of Health and Social Services
TEL: (907) 465-4170
FAX: (907) 465-4101
E-mail: dsallee@)health.state.ak.us
Program
Description: The purpose
of
Case
Definition:
Traumatic
Brain Injury: CDC case
definition.
Spinal Cord
Injury: CDC/CSTE case
definition.
State
Requirement for TBI/SCI Reporting: There is no state requirement mandating TBI/SCI case reporting.
Major Sources
of Data: The data are
collected through the Arizona Hospital Discharge Database, which includes all
non-federal
Last Year for
Which Data Are Available:
1996
Data
Dissemination: An annual
report format has been developed. Data from 1992-1994 for both TBI and SCI were
included in the most recent report dated
Publications:
Referral of
Surveillance Cases to Services: Surveillance data are not used to make referrals for services.
Contact Person:
Ardis Decker
Arizona Department of Health Services
Bureau of Community and Family Health Services
1740 W. Adams
Phoenix, AZ 850 07
Program TEL: (602) 542-1245
TEL: (602) 542-1125
FAX: (602) 542-1265
E-mail: adecker@hs.state.az.us
Program
Description (SCI): SCI
surveillance is conducted as part of the Arkansas Spinal Cord Commission’s
(ASCC) activities. The Arkansas Spinal Cord Commission (ASCC) assures that
appropriate services are provided to
Program
Description (TBI): The
purpose of the traumatic brain injury surveillance program is
to determine the incidence, severity, and
causes of traumatic brain injury in
Case
Definition:
Traumatic
Brain Injury: CDC case
definition.
Spinal Cord
Injury: A case of spinal
cord injury is defined as a state resident who has sustained an injury to the
spinal cord and has three of the following: loss of motor function, loss of
sensation, loss of bowel function, or loss of bladder function.
State
Requirement for TBI/SCI Reporting: Legislation, passed in 1975, requires reporting of new, potential
SCI cases to the registry within 5 days of discovery by attending physicians,
and public and private health and social service agencies. There are no state
requirements mandating TBI case reporting.
Major Sources
of Data:
Traumatic
Brain Injury: The major
sources of data come from the Hospital Discharge Data System (HDDS), death
certificates, on-site review of selected sample of hospital medical records,
Emergency Medical Services (EMS) and Trauma Systems records, and
Spinal Cord
Injury: The major sources
of data are reports from attending physicians and public and private health and
social service agencies. Most reports are received from social workers in
hospitals.
Last Year for
Which Data Are Available: 1995
(TBI); 1997 (SCI).
Data
Dissemination: There are
eight different mechanisms available for the dissemination of these data:
formal reports, data requests, the Internet, oral presentations, press
releases, newsletters, and poster sessions and papers at state and national
conferences. Data are also available upon request.
Publications:
Referral of
Surveillance Cases to Services: The Arkansas Spinal Cord Commission maintains a registry of all
state residents with spinal cord disability (which includes injury) and
provides lifelong case management services. Case managers are required by law
to visit newly identified persons with SCI within 15 days of notification for
assessment and to begin service delivery. The TBI surveillance data are not
used to make referrals for services.
Contact
Persons:
TBI:
Mary Gaither
Acting Director, Division of Chronic
Disease and Disability Prevention
4815 West Markham
Slot 41
Little Rock, AR 72205-3861
TEL: (501) 661-2227
FAX: (501)
SCI:
Cheryl Vines,
M.S.
Arkansas Spinal Commission
1501 North University, Suite 470
Little Rock, AR 72207
TEL: (501) 296-1788
FAX: (501) 296-1787
Email: arkscc@aol.com
Program
Description: The purpose
of the
Case
Definition:
Traumatic
Brain Injury: CDC case
definition.
Spinal Cord Injury: CDC/CSTE case definition for SCI
documented as a co-morbidity in TBI cases.
State
Requirement for TBI/SCI Reporting: There is no state requirement mandating TBI/SCI case reporting.
Major Sources
of Data: The major
sources of data are a statewide hospital discharge data system and unedited
multiple causes of death files.
Last Year for
Which Data are Available: 1996
Data
Dissemination: Data are
disseminated through state reports and publications, and upon request.
Publications: None.
Referral of
Surveillance Cases to Services: Surveillance system data are not used to make referrals for
services.
Contact
Person:
Roger Trent,
Ph.D.
Chief, Injury Surveillance and Epidemiology Branch
Department of Health Services
601 N. 7th St., MS #271
P.O. Box 942732
Sacramento, CA 94234-7320
TEL: (916) 323-3642
FAX: (916)323-3682
Program
Description: Since 1991,
Case
Definition:
Traumatic
Brain Injury: CDC case
definition.
Spinal Cord
Injury: Currently not
conducting SCI surveillance.
State
Requirement: Legal
authority to conduct injury surveillance is based on 1985 and 1991 state
statutes authorizing the health department to "develop and maintain a
system for detecting and monitoring environmental and chronic diseases within
the state and to investigate and determine the epidemiology of those conditions
which contribute to preventable or premature sickness and to death and
disability" (C.R.S. 25-1-107(1)(dd)(I)(B). Thus, in 1991, the Colorado Board of Health made
hospitalized head injuries a reportable condition (Regulation 1, List B).
Major Sources
of Data: Cases are
identified from the statewide hospital discharge system and death certificates.
In addition to these sources, data on the circumstances of injury, severity,
and initial outcome are abstracted from a sample of medical records.
Last Year for
Which Data Are Available: 1997
(TBI); 1986-1996 (SCI)
Data
Dissemination: A report
on the general descriptive epidemiology of TBI for each year of surveillance data
is distributed to local health departments, the Brain Injury Association of
Colorado, the Office of Health and Rehabilitation in the State Department of
Human Services, and to previous customers. Custom data requests are generated
in response to public calls from local community groups, reporters, and
students. The
Publications:
Referral of
Surveillance Cases to Services: As part of the TBI follow-up project, participants who indicate
the need for services are given contact information about services, or are
referred to the Brain Injury Association of Colorado, which has developed a
resource directory of services in the state.
Contact
Persons:
Barbara Gabella, M.S.P.H.
Surveillance Director
Colorado Department of Public Health
EMSP-IE-A5
4300 Cherry Creek Dr., South
Denver, CO 80246-1530
TEL: (303) 692-3003
FAX: (303) 691-7720
Email: barbara.gabella@state.co.us
Richard Hoffman,
M.D., M.P.H.
Chief Medical Officer & State Epidemiologist
Colorado Department of Public Health
OED-5000-A5
4300 Cherry Creek Drive, South
Denver, CO 80246-1530
TEL: (303) 692-2662
FAX: (303) 692-7702
Email: richard.hoffman@state.co.us
Program
Description: The purpose
of the registry is to identify all persons with spinal cord injury and
traumatic brain injury for the purpose of targeting and evaluating prevention
activities.
Case
Definition:
Traumatic
Brain Injury: CDC case
definition.
Spinal Cord
Injury: CDC/CSTE case
definition.
State
Requirement for TBI/SCI Reporting: Legislation, passed in 1985, requires the reporting of SCI cases.
Legislation, passed in 1990, requires the reporting of TBI cases.
Major Sources
of Data: Most reports are
received from acute care and rehabilitation hospitals and through medical
record reviews. Death certificates are also used.
Last Year for
Which Data Are Available:
1996
Data
Dissemination: Data is
disseminated through CNS injury annual reports; articles in the bimonthly, Louisiana
Morbidity Report; and articles in medical journals, such as the Journal
of the
Publications:
Referral of
Surveillance Cases to Services: Surveillance system data are not used to make referrals for
services.
Contact
Persons:
Holly Flood,
Program Manager
Injury Research & Prevention Section
Louisiana Office of Public Health
325 Loyola Avenue, Suite 315
New Orleans, LA 70112
TEL: (504) 568-2510
FAX: (504) 568-7312
Alicia Batchelder, M.P.H.
Project Epidemiologist
Injury Research & Prevention Section
Louisiana Office of Public Health
325 Loyola Avenue, Suite 315
New Orleans, LA 70112
TEL: (504) 568-8355
FAX: (504) 568-7312
Email: abatchel@dhhmail.dhh.state.la.us
Program
Description: The purposes
of the TBI and SCI Surveillance Systems are to provide timely epidemiologic
data on incidence-based traumatic brain and spinal cord injury within the state
(statewide and county levels), and to disseminate this information for policy
and prevention program planning and evaluation.
Case
Definition:
Traumatic
Brain Injury: CDC case
definition
Spinal Cord
Injury: CDC/CSTE case
definition
State
Requirement for TBI/SCI Reporting: Legislation, passed in 1988, requires the reporting of SCI/TBI
through the Disabled Individuals Reporting System (DIRS).
Major Sources
of Data: Main sources of
data are a statewide hospital discharge data system; the statewide Disabled
Individual’s Reporting System (DIRS); and death certificates. DIRS is a
reporting system by which all acute care hospitals in the state submit reports
for individuals receiving hospitalization for TBI, SCI, amputation, and stroke.
Other sources of data include case reports from the Office of the Chief Medical
Examiner and supplementary information from cause-specific surveillance data
systems (e.g. NHTSA-funded Crash Outcomes Data Evaluation System [CODES]).
Last Year for
Which Data Are Available: 1997
Data
Dissemination: Each of
Publications: None.
Referral of
Surveillance Cases to Services: The DIRS system was established so that recently injured individuals
could be advised of the various information, support, and service opportunities
available throughout the State. As reports are received, an information and
referral mailing is posted to each reported individual. This mailing describes
services and contact points for a variety of assistance-oriented providers
(e.g. vocational training, housing, assistive devices, etc.). Recipients
contact providers directly or access more information via a central phone
number.
Contact
Person:
Erich M. Daub
Office of Injury and Disability Prevention
Maryland Department of Health and Mental Hygiene
201 W. Preston Street, Rm. 302
Baltimore, MD 21201
TEL: (410) 767-5780
FAX: (410) 333-7279
E-mail: daube@dhmh.state.md.us
Program
Description: The purposes
of the system are to identify gaps in services for persons
who sustain a traumatic brain or spinal cord injury and their families, and to
develop, implement, and evaluate prevention programs in communities across
Case
Definition:
Traumatic
Brain Injury: CDC case
definition.
Spinal Cord
Injury: CDC/CSTE case
definition.
State
Requirement for TBI/SCI Reporting: Legislation, passed in 1991, requires the reporting of TBI/SCI cases
within 60 days of patient discharge.
Major Sources
of Data: Data are
obtained from a trauma registry data system, case reports from non-trauma
registry hospitals, hospital discharge data, hospital medical records and death
certificates.
Last Year for
Which Data Are Available:
1997
Data
Dissemination: Data are
disseminated via published reports to hospitals, medical associations and
specialty groups, community health agencies (the local public health system in
Publication:
Traumatic
Brain and Spinal Cord Injury Data Book, Volume 1: Incidence, mortality, and
causes, Minnesota, 1993-1996. Injury and Violence Prevention Unit,
Minnesota Department of Health,
Referral of
Surveillance Cases to Services: The Registry in
Contact
Person:
Mark Kinde, MPH
Injury and Violence Prevention Unit
Center for Health Promotion
Minnesota Department of Health
P.O. Box 64882
St. Paul, MN 55164-0882
TEL: (651) 281-9832
FAX: (651) 215-8959
Program
Description: The purposes
of the registry are for assessing the incidence of severe head and spinal cord
injuries and identifying high risk groups. The registry is designed to support
(1) evaluation of trauma center systems and (2) epidemiological studies, and
(3) provide information for developing injury prevention programs.
Case
Definition:
Traumatic
Brain Injury: CDC case
definition.
Spinal Cord
Injury: CDC/CSTE case
definition.
State
Requirement for TBI/SCI Reporting: Legislation, passed in 1986, requires the reporting of TBI and
SCI.
Major Sources
of Data: Acute care
hospitals and inpatient rehabilitation facilities are required to report cases
of TBI and SCI patients who are admitted, or who die in the emergency
department or are transferred from the emergency department. Reports are sent
to a central registry administered by the Missouri Department of Health. Data
to supplement these records are added from inpatient PAS records (Patient
Abstract System–a separate, more general, hospital reporting system) and from
the mortality data system.
Last Year for
Which Data Are Available: 1996
Data
Dissemination: Data are
disseminated via a standardized report published every two years and upon
request.
Publications:
Referral of
Surveillance Cases to Services: Surveillance system data are not used to make referrals for services,
but is used to locate counties that may need services or have clients that need
services.
Contact
Persons:
Mark Van Tuinen, Ph.D.
Chief, Bureau of Health Services Statistics
Missouri Department of Health
920 Wildwood Drive
TEL: (573) 751-6274
FAX: (573) 526-4102
Email: vantum@mail.health.state.mo.us
Program
Description:
Case
Definition:
Traumatic
Brain Injury: CDC case
definition.
Spinal Cord
Injury: CDC/CSTE case
definition.
State
Requirement for TBI/SCI Reporting: Legislation, passed in 1992, requires the reporting of TBI/SCI.
Major Sources
of Data: Physicians and
psychologists are required to report cases of TBI and SCI to the state health
department within 30 days after case identification. Each hospital in the state
is required to report, within 30 days after a patient is discharged, any TBI or
SCI that results in inpatient admission or outpatient treatment.
Last Year for
Which Data Are Available:
1996
Data
Dissemination: Data are
used for an annual report and ad hoc reports. Data are also available upon
request.
Publications: None.
Referral of
Surveillance Cases to Services: Surveillance system data are not used to make referrals for
services.
Contact Person:
Monica Seeland, RRA
Pat Fredrickson, RRA, Surveillance Coordinator
Nebraska Head & Spinal Cord Injury Registry
Division of Health Data Management
Nebraska Health & Human Services
Regulations & Licensure
301 Centennial Mall South
PO Box 95007
Lincoln, NE 68509-5007
TEL: (402) 471-0352 or (402) 471-0321
FAX: (402) 471-0180
Email: doh7145@vmhost.cdp.state.ne.us
Program
Description: The New York
State Department of Health, Bureau of Injury Prevention, maintains an ongoing
traumatic brain, spinal cord, and general injury surveillance system. The
purpose of the surveillance system is to provide statewide and county-specific
injury data in user-relevant formats to local, state and federal governments,
and private and voluntary agencies. Primary data uses include epidemiological descriptions
of the populations at risk and assisting in the development, implementation and
evaluation of public health programs.
Case
Definition:
Traumatic
Brain Injury: CDC case
definition
Spinal Cord
Injury: CDC/CSTE case
definition
State
Requirement for TBI/SCI Reporting: Legislation, passed in 1979, requires all hospitals to report all
discharges to the uniform hospital discharge data system. There are no specific
state requirements mandating TBI or SCI case reporting.
Major Sources
of Data: Hospitalization
data are obtained from the statewide inpatient uniform hospital discharge data
system, which has included E-codes since 1990. Death data are obtained from the
multiple cause of death files.
Last Year for
Which Data are Available: 1996
Data Dissemination: Data on TBI/SCI and other injuries are
published in the Bureau of Injury Prevention’s ongoing injury surveillance
document entitled "Injury Facts for
Data reports are
also provided upon request and remain a popular mode for receiving customized
information not routinely reported in our surveillance document.
Publications:
Referral of
Surveillance Cases to Services: Surveillance system data are not used to make referrals for
services.
Contact
Person:
Loretta A. Santilli, M.P.H.
Public Health Representative
E-mail: las09@health.state.ny.us
Kathleen K. Thoburn
Program Research Specialist
E-mail: kkt01@health.state.ny.us
New York State
Department of Health
Bureau of Injury Prevention
Empire State Plaza
Corning Tower Building, Room 557
Albany, New York 12237-0677
TEL: (518) 473-1143
FAX: (518) 474-3067
Program
Description: The purpose
of the statewide population-based surveillance system is to provide traumatic
brain injury/spinal cord injury (TBI/SCI) data for the planning,
implementation, and evaluation of prevention programs.
Case
Definition:
Traumatic
Brain Injury: CDC case
definition.
Spinal Cord
Injury: CDC/CSTE case
definition.
State
Requirement for TBI/SCI Reporting: Legislation, passed in 1991, and effective beginning
Major Sources
of Data: Approximately
100 data elements are collected on hospitalized and fatal cases through reviews
of medical records and medical examiner reports. These data are supplemented by
Department of Public Safety Traffic Collision Reports. Information is also
collected from inpatient rehabilitation facilities.
Last Year for
Which Data are Available: 1997
Data
Dissemination: Annual
reports on the epidemiology of TBI are prepared and distributed. Approximately every
other month, a brief report, "Injury Update" on the
epidemiology of a subset of cases is prepared (e.g. horseback riding-related
TBI). In addition, reports are submitted to the state neurologic
injury council and specific data analyses are generated on request.
Publications:
Referral of
Surveillance Cases to Services: Surveillance system data are not used to make referrals for
services.
Contact
Persons:
TBI:
Pam Archer, MPH
Oklahoma State Department of Health
Injury Prevention Service
1000
TEL: (405) 271-3430
FAX: (405) 271-2799
Email: pama@health.state.ok.us
SCI:
Sheryll Shariat
Oklahoma State Department of Health
Injury Prevention Service
1000
TEL: (405) 271-3430
FAX: (405) 271-2799
Email: sherylls@health.state.ok.us
Program
Description: The system
is part of more comprehensive injury surveillance and disability prevention
efforts whose purposes are to design and implement injury prevention and
secondary disability prevention programs in the Department of Health and the
Disability and Health Program.
Case
Definition:
Traumatic
Brain Injury: A case is
defined as a
1) admitted to acute care or inpatient rehabilitation hospitals
and discharged with any of CDC defined ICD-9-CM TBI diagnoses. [In addition,
905.0, 907.0 (late effects of TBI) and post-concussion syndrome (310.2) codes
are reviewed for eligibility and case finding.]; and 2) any death with any of
the above multiple cause of death codes (plus 873 and a gunshot wound.)
Spinal Cord
Injury: CDC/CSTE case
definition.
State
Requirement for TBI/SCI Reporting: Legislation, passed in 1987, required the reporting of TBI
discharges by hospitals to the Office of Vocational Rehabilitation. Amended
legislation, in 1996, changed the reporting agency to the Department of Health
and added reporting of SCI to the Central Registry of Traumatic Brain Injury.
Major Sources
of Data: The main sources
of data are hospital discharge data, death certificates, and TBI Registry
reports submitted by hospitals to the TBI Registry. Medical Examiner files are
available for review 1999 from a comprehensive database being established. SCI
registry reporting will begin following final promulgation of rules and
regulations.
Last Year for
Which Data are Available: 1996 by Person/Event/Year, with 1997 in
preparation. TBI Registry data for hospitalizations are available through the
current month.
Data
Dissemination: A brief
report for each year is sent to legislators. A fuller, more analytical report
will be prepared after preliminary data are considered final. A one page brief
in "Health by Numbers" will reach physicians via the Rhode Island
Medical Journal. Cross tabulations for aggregate data are also available upon
request.
Publications: None.
Referral of
Surveillance Cases to Services: TBI Registry entrants receive a mailing, informing the individual
with TBI, or the family of a child, of services, including a mail-back for the
Rhode Island Traumatic Brain Injury Resource Directory. This Directory was
prepared in collaboration with the Brain Injury Association of Rhode Island,
the Rhode Island Technical Assistance Project (which provides training for
school personnel in TBI issues) and several other state organizations. The
Disability and Health Program and the state Early Intervention Program are
exploring ways to do outreach to parents of young children identified in the
Registry. The surveillance system does not yet include mailings to persons with
new SCIs, but a section has been added on SCI in the
latest revision of the Resource Directory.
Contact
Persons:
David Hamel,
M.P.A.
Disability and Health Program
Rhode Island Department of Health
3 Capitol Hill, Room 302
Providence, RI 02908-5097
TEL: (401) 222-4632
FAX: (401) 222-3816
Mary C. Speare, M.A.
David Hamel, M.P.A.
Disability and Health Program
Rhode Island Department of Health
3 Capitol Hill, Room 302
Providence, RI 02908-5097
TEL: (401) 222-5931
FAX: (401) 222-5957
Program
Description: The purposes
of the
Case
Definition:
Traumatic
Brain Injury: CDC case
definition.
Spinal Cord
Injury: CDC/CSTE case
definition.
State
Requirement for TBI/SCI Reporting: Legislation, passed in 1992, requires the reporting of TBI and
SCI to the South Carolina Traumatic Head and Spinal Cord Injury Information
System from all data sources. The South Carolina Department of Health and
Environmental Control (DHEC) also has statutory power
to obtain patient-related information in the state.
Major Sources
of Data: The South
Carolina TBI Surveillance System uses three different data sources to acquire
information: the Statewide Emergency Department Visits Data System, the
Statewide Hospital Discharge Data Set and the Multiple Causes of Death Data
Set.
Last Year for
Which Data are Available: 1997
Data
Dissemination: The South
Carolina TBI Surveillance System disseminates data through several mechanisms,
including an annual report, the DHEC reportable disease and agency annual
reports, and through presentations. In addition, the project maintains a web
site for TBI activities with a hyperlink to partner agencies. The website is
located at the following URL: http://www.state.sc.us/dhec/hsbrain.htm.
Data are also available upon request.
Publications:
Referral of
Surveillance Cases to Services: The South Carolina TBI and SCI surveillance system provides
information on TBI and SCI survivors to Department of Disability and Special
Needs (DDSN). TBI survivors with AIS score of $3, or AIS score of 2 and discharge
disposition indicating a need for rehabilitation measures, are referred to
DDSN. All persons with SCI are referred to services. DDSN, with 26 case workers
covering all 46 counties of the state, contacts these individuals to assess
their needs and eligibility for services.
Contact
Persons:
TBI:
Leroy Frazier,
Jr. M.S.P.H.
SC Department of Health & Environmental Control (DHEC)
Mills/Jarrett Complex
Box 101106
TEL: (803) 898-0314
FAX: (803) 253-4001
E-mail:fraziel@columb61.dhec.state.sc.us
SCI:
Anbesaw Selassie, Dr.P.H.
Dept. of Biometry and Epidemiology
Medical University of South Carolina
135 Rutledge Avenue, Suite 1148
POBox 250551
Charleston, SC 29425
Phone (843)876-1140
Fax (843)876-1126
Program Description: The purposes of the
Case
Definition:
Traumatic
Brain Injury: CDC case
definition.
Spinal Cord
Injury: CDC/CSTE case
definition.
State
Requirement for TBI/SCI Reporting: Legislation, passed in 1989, requires the reporting of SCI.
Legislation, passed in 1990, requires the reporting of TBI.
Major Sources
of Data: The main sources
of data are hospital discharge data. A random sample of all reported traumatic
brain injury is selected and detailed information is abstracted from hospital
medical records, medical examiner records, and rehabilitation records.
Last Year for
Which Data are Available: 1996
Data
Dissemination: Annual
reports are completed for TBI and SCI. A report summarizing all years of
available data has been distributed to other programs within the Utah
Department of Health, local Utah Health Departments, the Highway Safety Office,
community advocacy groups, and others interested in the prevention of traumatic
brain injury. Data are also provided to universities, hospitals, physicians and
others upon request. In addition, articles have been submitted for
peer-reviewed publications.
Publication:
Thurman DJ, Jeppson L, Burnett CL, Beaudoin
DE, Rheinberger MM, Sniezek,
JE. Surveillance of traumatic brain injuries in
Referral of
Surveillance Cases to Services: Surveillance system data are not used to make referrals to
services.
Contact
Person:
Erick Henry
Violence and Injury Prevention Program
Utah Department of Health
288 North 1460 W
P.O. Box 14420
Salt Lake City, UT 84114
TEL: (801) 538-6864
FAX: (801) 538-6510
Community Interventions for Disabilities Related to Spinal Cord
Injury
Chicago Rehabilitation Institute
Project
Description
Pressure ulcers
are a frequent complication following spinal cord injury (SCI), one which is costly
in terms of economic, health, and social-emotional quality of life. Recent
changes in health care delivery that resulted in decreased lengths of
hospitalization SCI may place these persons at even greater risk for pressure
ulcers. Specific aims of this study are to test the efficacy of a multifaceted,
behavioral protocol on : 1) pressure ulcer prevention,
2) costs of pressure ulcer prevention and treatment, and 3) skin care
self-efficacy and quality of life. The study will consist of a randomized clinical
trial with a total of 146 subjects in their first SCI hospitalization, who will
be recruited from two sites. The protocol will be delivered during acute
rehabilitation and postdischarge. The control group
will receive usual care, including education and discharge planning. The
experimental group will receive usual care plus interventions by a research
nurse who will use behavioral methods to increase adherence to an
individualized skin care regimen. Telephone contacts and home visits will
continue for the first 4 months after discharge. Hypotheses will examine the
effect of treatment condition on: 1)cost of pressure
ulcers (rehospitalization charges, pressure ulcer
care (supplies, family related costs, health services); 2) costs of pressure
prevention (intervention costs, support equipment, and other resources), and 3)
patient outcomes (number and severity of pressure ulcers, number of pressure
ulcer-free days, number of lost activity days, adherence to skin care regimen,
self-efficacy, and quality of life).
Contact
Person:
Rosemarie B.
King, Ph.D., R.N.
email: rbking@nwu.edu
Phone: 312/908-8038
Fax: 312/908-5925
Project Description
Approximately 2
million persons in the
Contact
Person:
Cheryl Vines,
M.S.
Arkansas Spinal Commission
1501 North University, Suite 470
Little Rock, AR 72207
TEL: (501) 296-1788
FAX: (501) 296-1787
Email: arkscc@aol.com
Traumatic Brain Injury Registry
The Colorado Department of Public Health and Environment was awarded a
cooperative agreement to establish a TBI follow-up registry. Craig Hospital,
through the Colorado Department of Public Health and Environment intends to
enroll all surveillance-identified cases with severe TBI and a 20% random
sample of less severe cases, follow them annually according to a standard
protocol, and assess medical complications, functional limitations, community
integration, life satisfaction, and service utilization. The Health Department
will work with
exportable registry model.
Official Oregon definition of
"Traumatic brain injury" means an acquired injury to the brain caused by an
external physical force resulting in total or partial functional disability or
psychosocial impairment, or both, that adversely affects a child's educational
performance. The term includes open or closed head injuries resulting in
impairments in one or more areas, including cognition; language; memory;
attention; reasoning; abstract thinking; judgment; problem-solving; sensory,
perceptual and motor abilities; psychosocial behavior; physical functions;
information processing; and speech. The term does not include brain injuries
that are congenital or degenerative, or brain injuries induced by birth
trauma. (OAR 581-15-005)
NOTE: "Children with disabilities" means
those school age children who are entitled to a free appropriate public
education as specified by ORS 339.115 and who require special education because
they have been evaluated as having one of the following conditions as defined
by rules established by the State Board of Education: Mental retardation,
hearing impairment including difficulty in hearing and deafness, speech or
language impairment, visual impairment, including blindness, deaf-blindness,
emotional disturbance, orthopedic or other health impairment, autism, traumatic
brain injury or specific learning disabilities." (ORS 343.035(1))
Used
to determine eligibility for special education services in public schools.
Oregon State Health
Service epidemiologists use the CDC definitions based on ICD-9-CM codes for hospitalizations and ICD-10 codes for
fatalities. The codes used to define TBI
hospitalizations are N Codes 800.0-801.9, 803.0-804.9, 850.0-854.1,
959.01. The codes used to define fatal
TBI are S01.0-01.9, S02.0-02.1,S02.3, S02.7-02.9,
S06.0-S06.9, S07.0, S07.1, S07.8, S07.9, S09.7-S09.9, T01.0, T02.0, T04.0,
T06.0, T90.1, T90.2, T90.4, T90.5, T90.8, T90.9.