Return to Governor’s Task Force on Traumatic Brain Injury Home Page

Click on back arrow or button on your browser to return to previous page

To search for specific item click Edit then find or Ctrl+F


Insurance Coverage and TBI

Web page with links relating to Insurance and TBI         

TBI Bibliography                                 

Acquired Brain Injury Literature Resource Guide                                                                         

TBI Model Systems Home Page                                        

TBI Model Systems Database           

Model Systems Links                

OHSU Model Systems Links                                        

Rehab of Persons with TBI                                      

Assessing Outcomes of TBI in Children                          

CDC Report to Congress – 1999                                                 

Oregon Brain Injury Resource Network 

Information Sources on TBI                    

Useful Internet Links and Discussion Groups for Persons with Brain Injuries                          

Brain Injury Transition Issues: Getting Back to the Real World                                                            

Rehabilitation Research Center                          

Consumer Law page on TBI                                     

Santa Clara Valley Med Center TBI Survey                                              

Brain Injury Resource CenterSeattle WA                                           

BIA Harris Poll Survey                         

Brain Injury Resource Links           

National Institute of Disability and Rehabilitation Research   NIH Consensus Statement on Rehabilitation of Persons With Traumatic Brain Injury October 26-28, 1998 – Important









Brain Injury Society--Brain Injury Society was created to offer a quick response service to all brain injured (whether acquired or traumatic, recovered and recovering) individuals. Acquired and traumatic brain injury have overlapping symptoms yet are very distinct from each other. Brain Injury Society offers referral, consumer and legal advocacy, motivated support groups, NYS Medicaid Waiver Provider Services, awareness workshops, and assistance in deciding a rehabilitation facility of a loved one. Acquired brain injury is an internal disorder caused by neuro-organic malfunctions. Traumatic brain injuries are externally caused, as in car accidents, sports injuries and physical assaults. Visit this site for more information.

Clinical Trials and Noteworthy Treatments for Brain Tumors--The leading Internet resource for brain tumor treatment and information!

TBI Helpdesk for Caregivers--Owned and Operated by Jamaica Hospital Medical Center - Sponsored by United Hospital Fund.

Tillison Research Center--At the Tillison Research Center they offer complete up-to-date research on any type of brain tumor including a background check, treatments, side effects and any clinical trials going on at the present time for that type of brain tumor. At the center they also try to help get needed transportation for treatments and other programs for brain tumor patients and there families.

The Whole Brain Atlas--Tremendous brain atlas, visuals are terrific, the depth is superb. From Harvard, and it is worthy of Harvard. This is the web at its best; very technical but you can learn at your own pace, through text and visuals.

Brain Map--This article describes some of the common effects of damage to specific areas of the brain.

Traumatic Brain Injury Resource Guide--The TBI Resource Guide is the Internet's central source of information, services and products relating to traumatic brain injury, brain injury recovery, and post-acute rehabilitation.

TBI Publications--Many of the articles in this site can either be ordered, viewed, or downloaded. Go to the CNS site and just click on a title of choice and then on the link following the reference line.

The Anatomy of Head Injury--This article describes what happens to the brain as a result of a trauma.

Head Injury Hotline--Head Injury Hotline is a place where visitors can get information, join a discussion group, build advocacy skills, and self-care skills, or assess their own clinical situation and more..

Neuropsychology Central--This is a comprehensive World Wide Web directory listing devoted exclusively to the subject of Human Neuropsychology.

Community Integration of Individuals with TBI--Study discusses research with respect to community reintegration of individuals with TBI.

MCH Neurology Web Forum--This is an attempt to start an interactive, online discussion about various Neurology-related topics. Ongoing, unscheduled chats on a number of neurology-related topics. User-friendly page!

MGH Neurology Chat Rooms--These Chat Rooms are provided as a free public service by the Department of Neurology at Massachusetts General Hospital.

Head Injury Society of New Zealand Home Page--The mission of this site is to provide basic information for people who are newly introduced to brain injury by the injury or illness of a friend or relative. The site is also a link between industry professionals and local support groups. Finally, but perhaps most importantly, the site will allow people in recovery from head injury to talk to each other by e-mail and to be advocates for their own needs.

Center for Computer Redistribution for the Disabled--A nonprofit organization with a mission of improving the quality of life for the disabled or disadvantaged by utilizing and coordinating the technological resources of the community.

CCC of VA--The Concussion Care Centre of Virginia, Ltd. provides interdisciplinary rehabilitative care for individuals with neurologic and muscoloskeletal disorders. Some of the neurologic disorders treated include acquired brain injury, spinal cord injury, multiple sclerosis, post concussive disorders, cognitive behavioral problems and cranial trauma. The Concussion Care Centre of Virginia, Ltd. is also one of the few B(intrathecal baclofen) therapy National Spasticity Centers in the state for monitoring of intrathecal baclofen pumps and dosage adjustment.

TBI, ABI, Traumatic Brain Injury for Survivor Stories--View the personal homepages of survivors & caregivers. This link also provides free homepages for any survivor or caregiver here. No commercial sites please.

National Link Page--WWW links to local and national Brain Injury Associations, chat rooms, personal pages, general information, parent/kid links, employment, professional and/or rehabilitation/cognitive sites, prevention (helmets and vehicular safety), disability legislation and related law, medical case management, and TBI related organizations.

US Government Agencies--A List of Federal Agencies on the Internet.

Shaken Baby (as a form of TBI)--The Shaken Baby Alliance's mission is to provide support for SBS victim families (Including adoptive and foster parents), advocate for justice for SBS victims, and increase SBS awareness.

Social Security Administration: How we can help with Vocational Rehabilitation--The Social Security Administration (SSA) can help people with disabilities get the vocational rehabilitation services they need to return to work or to go to work for the first time. We can put them in touch with agencies that provide services such as job counseling, training and job placement.

Great Informational Links--Chattanooga Area Brain Injury Support Group

The Disability Link Barn--Access Unlimited is a manufacturer/distributor of adaptive transportation and mobility equipment for people with disabilities.

Brain Injury Center--Your doorway to information regarding acquired brain injury which is any injury to the brain including stroke, trauma, anoxia, infection, and tumors. There is a world of help available to you and your family through this doorway. Welcome to a place full of information and resources, the Brain Injury Center!

Intro to NeuroScience Center--This site offers an expanded directory of treatment facilities and survivors of brain injury. There is a searchable database containing past articles from the Journal of Cognitive Rehabilitation. This site now maintains an events calendar for worldwide happenings within the NeuroScience field (you can submit you own events for free). The Journal of Cognitive Rehabilitation, featured within the NeuroScience Publisher's section of the site, now presents full reprints of past articles updated on a monthly basis.

Gentiva Health Services--Rehab without Walls--Rehab Without Walls was founded in 1991 as an alternative to traditionally delivered rehabilitation services. As the name suggests, the intention is to provide comprehensive rehabilitation beyond the boundaries of the typical walls associated with clinic and hospital environments

Brain Injury Information Resource--Brain Injury - A Guide for Families and Friends. The purpose of this booklet is to provide basic information about brain injury and its treatment. Please read it at your own pace. As you learn more about the brain, you will have many questions. The health care team encourages you to ask questions.

The ABI/TBI Information Project--This page is dedicated to providing information on brain injury without preference to any particular person, thought, theory or belief.

Infoseek -- Brain Injury--Great links including a brochure from the U.S. government's CDC on concussion, the American Academy of Neurology's Slide Show on Concussion, a collection with educational materials, chat, experts, related websites, and other features, and interviews with a neurosurgeon, brain geography, a transcript of the documentary, a teacher's guide, and other resources. Take time to visit this informative group of sites.

TBIMS Links--The Traumatic Brain Injury Model Systems National Data Center Kessler Medical Rehabilitation Research and Education Corporation of West Orange, New Jersey.

The TBI Project--The Traumatic Brain Injury (TBI) Grant Injury to one's brain is a frightening prospect. The recovery process is often long and frustrating for the person injured, as well as his or her friends and family. The need for information is great, the need for support even greater. The TBI Grant provides clinical/community and research activities.

Coma Waiting Page--You Who are Waiting While Someone is in a Coma.

National Resource Center for Traumatic Brain Injury--A Guide for Survivors.

Links to Brain Injury related sites on the WWW--Links brought to you by the Brain Injury Association of Washington.

Recent Messages from TBI-SPRT by thread--Visit this link to read up-to-date messages from injured as well as family.

Traumatic Brain Injury Survival Guide--Nearly all of the survivors of a traumatic head injury and their families with whom I have worked has had one complaint: There is nothing written that explains head injury in clear, easy to understand language. Most say the available material is too medical or too difficult to read. The goal of this online book is to better prepare the head injured person and family for the long road ahead.

USA Today Article--The trials in surviving brain injury. It used to be a given that they'd die--roadside casualties of car crashes, bike accidents, falls and violence. That was before rapid-response helicopter rescues, trauma centers, high-tech neurology.

John & Clara's TBI Related Sites and Information--TBINET was started by John & Clara Lyon in late 1997. We started in 1994 as a brain injury victim and a caregiver when Clara was in a motor vehicle accident sustaining a "mild" brain injury. Read more. . . .

University/Education Disability Information--Categories include Education Resources, Job Training/Placement, and University Resources.

Brain Injury and Neuropsychology--Devoted to the understanding of brain injury, and the neuropsychologist's role in identifying, proving and treating brain injury; a.k.a. presented by ANTOINETTE APPEL, Ph.D. of Plantation, Florida.

TBI, Brain Injury, Links--The TBI Chat Room & Homepage.

Net Finder USA: Brain Injury--This link provides over 50 additional links relating to BI and coma. What a great site to bookmark!

Brian's Brain--A Traumatic Brain Injury site created by a 36-year-old, 5-year survivor of traumatic brain injury named Brian Campbell. Take a moment to read his story.’s™ goal is to provide information to consumers that helps them select the best quality providers of medical care. The one-of-a-kind Internet service supplies valuable information about the quality of health care provided by individual hospitals, physicians, nursing homes, and health plans in the United States.

Traumatic Brain Injury Resource Guide--This TBI Resource Guide is the internet's central source of information, services and products relating to traumatic brain injury, brain injury recovery, and post-acute rehabilitation. This site includes a patient evaluation criteria and a patient satisfaction survey online.

Arthritis Website--This comprehensive arthritis site is well worth a visit.

Juvenile Rheumatoid Arthritis Database Project--This site is devoted to serving the special needs of children, teens and young adults with childhood rheumatic diseases and their families.

A Parent's Guide to Special Ed/Special Needs--Disabilities covered under the Individuals with Disabilities Education Act (IDEA).

NBC's Dateline--Amnesia--The Injured Brain. Memory. How your Brain Remembers. Magnetic Resonance Imaging (MRI) showing the axial view of a normal, uninjured brain of a male.

CBS HealthWatch--Health Topics from A to Z courtesy of CBS HealthWatch.

National Center for Injury Prevention and Control--Injury Care • Acute Care • Disability & Rehabilitation • Traumatic Brain Injury Violence • Family & Intimate • Suicide • Youth. The National Center for Injury Prevention and Control (NCIPC) works to reduce morbidity, disability, mortality, and costs associated with injuries.

Journals/Cognition--A comprehensive listing of online journals from the fields of psychology, psychiatry, and related mental-health fields. Chances are, if its out there, its listed here.

Medscape--Medscape® The Online Resource for Better Patient Care® --Medscape offers specialists, primary care physicians, and other health professionals the Web's most robust and integrated multi-specialty medical information and education tool.

Law--Legal Information and Resources

Legal Encyclopedia--Over 200 products. Nolo's mission is to increase the average person's access to the law. When the company began back in 1971, a book was the best way to put the law into people's hands. So Nolo published paperbacks that gave folks the step-by-step instructions and forms they needed to handle day-to-day legal tasks. Now this information is available online.

Injury Lawyer Shop--InjuryLawyerShop is an online resource that allows you to find information from lawyers in your area that practice Personal Injury Law including Wrongful Death, Auto Accidents, Trucking Accidents, Motorcycle Accidents, Product Liability/Recalls, Defective Products, Brain/Head Injuries, Burn Injuries, Spinal Cord Injuries, Back Injuries, Toxic Torts, Premises Liability, Dog Bites, Nursing Home Abuse, and Class Actions. While most legal directories offer some information about Personal Injury Law, the most valuable information comes from your local attorney.

Legal Rights Info Center--The goal of the Legal Rights infocenter is to provide quality, up-to-date information about class-action lawsuits, criminal defense, divorce, medical malpractice, personal injury, pharmaceutical litigation, worker's compensation, wrongful death, wrongful termination, and intellectual property (copyright, trademark, and patent) law.

Head Injury Law Firm--Nelson Tyler Langer (Telephone: 206-623-7520) are a law firm dedicated to helping people receive the medical care and compensation they deserve after suffering the effects of a brain injury, spinal cord injury or other serious injury following an accident.

Hospice Patients Alliance--Resuscitation, DNR Orders, CPR in hospice Orders, Power of Attorney Forms, Advanced Directives. Making decisions ahead of time, filling out Advanced Directive forms and using DNR forms to clarify the patient's wishes has many benefits, and it is important to realize, the patient can change his Advanced Directive or DNR form at any time, simply by making his wishes known to the physician, other hospice staff or other adults.

The Library of Congress--The Library of Congress is the nation's oldest federal cultural institution. The Library preserves a collection of more than 119 million items, more than two-thirds of which are in media other than books. These include the largest map, film and television collections in the world. In addition to its primary mission of serving the research needs of the U.S. Congress, the Library serves all Americans through its popular Web site and in its 22 reading rooms on Capitol Hill.

Library of Congress Marvel--Covers Census Data, Congressional Info, White House Documents, State Department Reports, etc.

Library of Congress Information System (LOCIS)--An on-line catalog containing U.S. government copyright files, databases containing current info about federal legislation and foreign law. Visiting this link is a Telnet session and NOT a website link.

The Law Library of Congress--Global Legal Information Network (GLIN)--The Law Library of Congress provides an online database with information on the national laws of more than 35 countries, with additional countries being added on a continuing basis. Presently it consists primarily of searchable legal abstracts in English of laws and regulations enacted since 1976, but the full texts of items of legislation in the original languages are now being added for some nations. There is also a guide to Online Law available through this site.

The Library of Congress: Law Library Reading Room Services-- Although the Law Library serves primarily as the foreign law research arm of Congress, its reference and legal specialists also provide American law reference and foreign law research and reference to the other branches of Government. The Law Library encourage patrons to first consult their local public and academic libraries, county library, and state library before contacting the Law Library for assistance. The Law Library should be considered a library of "last resort."

Global Legal Information Network--The Global Legal Information Network (GLIN) maintains and provides a database of laws, regulations, and other complementary legal sources. The documents included in the database are contributed by the governments of the member nations from the original official texts which are deposited, by agreement of the members, in a server initially at the Library of Congress of the United States of America.

Americans With Disabilities Act Document Center--This website contains copies of the Americans with Disabilities Act of 1990 (ADA), ADA regulations, technical assistance manuals prepared by the United States Equal Employment Opportunity Commission (EEOC) or the United States Department of Justice (DOJ). It also contains other technical assistance documents sponsored by the National Institute on Disability and Rehabilitation Research (NIDRR) and reviewed by EEOC or DOJ. This website also provides you with links to other Internet sources of information concerning disability issues as well as links to other Internet sources of information concerning legal issues. It also contains information on occupational health and safety and Total Quality Management issues. If you are searching for an item not found on this site, you can use Internet search tools and links to libraries which this site provides. Furthermore, this website provides you with information concerning and links toward the Job Accommodation Network (JAN).

TBI legislation, and the TBI Act (Public Law 104-266)--This is the web site for Congress including the Congressional Budget Office and General Accounting Office, etc. It was named after Thomas Jefferson. The "loc" stands for Library of Congress, so there's a lot of good stuff available on it. Pulling down the Committee Report to the Act (from the 104th Congress) is useful for gaining insights into Congress' intentions for the law.

U.S. Architectural and Transportation Barriers Compliance Board--The U.S. Access Board, also known as the Architectural and Transportation Barriers Compliance Board. The Board, created in 1973, has served the nation as the only independent federal agency whose primary mission is accessibility for people with disabilities.

American Bar Association--As the world's largest voluntary professional membership association, the ABA has access to expert opinions, quality research and objective, high-quality reports-information that you can trust. Plus, the ABA offers a national platform to exchange ideas, discuss ethics, and explore important legal issues.

Association of Trial Lawyers of America--As the world's largest trial bar, ATLA promotes justice and fairness for injured persons, safeguards victims' rights--particularly the right to trial by jury--and strengthens the civil justice system through education and disclosure of information critical to public health and safety.

The Better Business Bureau Web Server--Better Business Bureaus: Provide reports on business firms that will be helpful to you before making a purchase. The BBB system responds to millions of such inquiries each year; Provide information about charity groups and organizations; Help resolve consumers' disputes with businesses through telephone conciliation, mediation and arbitration; and Promote ethical business standards and voluntary self-regulation of business practices.

Canadian Legal Resources-- Canada's the first and leading guide to Canadian legal resources on the Internet.

Cornell University Legal Information Institute--The LII's "Law About" pages provide brief summaries of law topics with links to key primary source material, other Internet resources, and useful offnet references. They can be accessed through: the following set of broad topic categories (scroll down), through an alphabetical listing of topics, and through a searchable index.

Head Injury Law Glossary--This link to the Brain Injury site defines law terms commonly used in injury claims and their resulting judicial proceedings. Entries presented in this glossary have been simplified for ease of understanding by non lawyers . Entries in this section were taken from Black's Law Dictionary, Abridged fifth edition, 1983 and Oran's Law Dictionary for Non Lawyers,1975.

Juvenile Justice Clearinghouse--The Juvenile Justice Clearinghouse is sponsored by the Juvenile Justice Role Model Development Project, at Florida State University and Florida A & M University. Our goal is to be your one-stop Web site for juvenile justice information, programs for at-risk youth, and employment opportunities within this field. Once you recognize our icons, you'll be navigating our site like a pro.

Disability Legislation And Related Law--BIA National Link page.

The Council for Disability Rights Newsletter--The Council's Newsletter Online--September News--Computer Icons Block Access for the Blind by Audrey Choi.

Disability-Related Federal Register Notices and DOJ Press Releases--Disability-Related Federal Register Notices of 1997. The website takes you to notices from the 1997 Federal Register (Volume 62) database.

The Consumer Law Page: Articles--These articles are for individuals, injured workers, consumers and owners of small businesses who have suffered personal injuries, property damage or financial losses caused by negligent misconduct, toxic chemicals, defective products, or fraud.

Epilepsy Online Information

Epilepsy Foundation Of America--4351 Garden City Drive, Landover, MD, 20785-2267. Telephones: 301-459-3700 / 800-332-1000. Provides information and referrals to patients with epilepsy/seizure disorders, their families, health professionals, and the general public.

American Academy of Neurology--1080 Montreal Avenue, St. Paul, MN 55116--Telephone: 615-695-1940. Provides information to both medical professionals and to the public. Included are fact sheets and brochures on a variety of neurological conditions and procedures, the American Academy of Neurology (AAN) Patient Information Guide, general Neurology information, membership information, and current news.

Charlie Foundation--501 10th Street, Santa Monica, CA 90402--Telephones: 800-367-5386. Promotes the use of the ketogenic diet through awareness and training.

Epilepsy Action--British Epilepsy Association, New Anstey House, Gate Way Drive, Yeadon, Leeds LS19 7XY; Phone: (0)113 210 8800, Freephone helpline number is +44 (0)808  800 5050.

National Society for Epilepsy--Created by physical therapy Master's degree students to assist physical therapists and others to find helpful patient education and prevention sources.Chalfont St. Peter, Gerrards Cross, Buckinghamshire, SL9 0RJ, UK. Telephone: 01494 601400.

Medic Alert Foundation--2323 Colorado Ave. Turlock, CA 95382 Telephone: 209- 668-3333 - Offers Medic Alert bracelets/necklaces, which can inform emergency medical personnel of medical complications. Mental Health Net -- Self-help resources including symptoms and treatments. Many of these resources are targeted at the lay person, but professionals may find them useful as well.

Assistance Dogs International, Inc.--c/o Canine Partners For Life, 334 Faggs Manor Rd. Cochranville, PA 19330, Telephone: 610- 869-4902. Setting Standards For The Assistance Dog Industry Since 1987. The three types of Assistance Dogs are guide dogs for the blind and the visually impaired, hearing dogs for the deaf and hard of hearing and service dogs for the physically disabled and/or mobility impaired.

Australian Support Dogs -- P.O. Box 644, Mona Vale N.S.W 2103, Australia, Telephone: 612-9979-6986 Fax: 612-9979-6827; E-mail:

Canine Companions for Independence -- P.O. Box, Santa Rosa, Santa Rosa, CA 95402-0446 Telephone: 707-577-1700 (v); 707-577-1756 (TDD); E-mail:

Japan GuideDog Assn. -- Tsujido, Eastcost 2-4-24, Fujisawa City, Japan, Telephone: 81-466-35-7524; Fax: 81-466-35-7524; E-mail:

Scenter Line Kennels--Service and seizure alert dog information.

Jewish Assistance Organizations

ChesedNet--Comprehensive Jewish organization directory, financial information, medical index and safety index.

Bikur Cholim Around The World--This site is hosted by M. Newhouse Realty, Inc. - Monsey NY

Legal Right to equal employment opportunities and equal access to public/private facilities

Americans with Disabilities Act

Mississippi ADA Network


Disability benefits if you are unable to work

Social Security Administration

Contact your local Social Security Administration office or call 800-772-1213 to make an appointment to apply for SSDI (Social Security Disability Insurance for workers and their children or surviving spouses who have Social Security coverage) or SSI (Supplemental Security Income for people with little or no income and resources).

Social Security recipients can keep up with the latest changes in benefits and rules through the Administration’s electronic newsletter.

Insurance benefits


Medicaid Hotline: 800-884-3222
Medicare Part A: 800-932-7644
Medicare Part B 800-682-5417

Medicaid Waver Program

601-981-1511 or 601-981-151 (FAX)



Spinal Cord Injury
Brain Injury
Stroke and Neurological Diseases


Support groups and disability specific information

Brain Injury Association of Mississippi

Independent living

Statewide Independent Living Council

Resources to help those with disabilities live as independently as possible in their home or community

Spinal Cord Injury/Traumatic Brain Injury Trust Fund Program

A program administered by the Mississippi Department of Rehabilitation Services that helps people live independently in their homes and communities