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National Association of State Head Injury Administrators
Contact Information
State:
Name:
Agency: Oregon Department of Education
Telephone: (503) 378-3600 ext 2329
Fax: (503) 378-5156
Email: steve.johnson@state.or.us
Name:
Agency: Teaching Research -
Telephone: (541) 346-0573
Fax: (541_346-0599
Email: martham@oregon.uoregon.edu
Name: Ann Glang
Agency: Teaching Research -
Telephone: (541) 346-0594
Fax: (541) 346-0599
Email: anng@oregon.uoregon.edu
Lead Agency
1. What is
the lead agency for TBI in your state? Oregon Department of Education
2. Is
the agency mandated in statute? No
3. Is
the agency mandated by executive order?
No
4. Where is the
lead agency located in state government (indicate Department, Division,
Program)?
Department of
Education -- Office of Special Education
Research
Assistant Notes:
Definitions
5. How
is TBI defined in your state? It is the policy of the state that any
person experiencing an injury defined as an injury to the brain caused by
extrinsic forces where the injury results in the loss of cognitive,
psychological, social, behavioral or physiological function for a sufficient
time to affect that person's ability to perform activities of daily living
shall be considered a person with disabilities.
6. For
what purposes is the definition used? Clarifying that persons with TBI
are persons with disabilities for determinining
7. Is this
definition in statute? Yes
8. If
so, what is the citation? ORS 410.715
9. Do
other TBI-related definitions exist in your state? (eg. special education)?
Yes
10. If so,
what are the definitions and what are they used for? "Traumatic
brain injury" means an acquired injury to the brain caused by an external
physical force resulting in total or partial functional disability or
psychosocial impairment, or both, that adversely affects a child's educational
performance. The term includes open or closed head injuries resulting in
impairments in one or more areas, including cognition; language; memory;
attention; reasoning; abstract thinking; judgment; problem-solving; sensory,
perceptual and motor abilities; psychosocial behavior; physical functions;
information processing; and speech. The term does not include brain injuries
that are congenital or degenerative, or brain injuries induced by birth
trauma. (OAR 581-15-005)
NOTE:
"Children with disabilities" means those school age children who are
entitled to a free appropriate public education as specified by ORS 339.115 and
who require special education because they have been evaluated as having one of
the following conditions as defined by rules established by the State Board of
Education: Mental retardation, hearing impairment including difficulty in
hearing and deafness, speech or language impairment, visual impairment,
including blindness, deaf-blindness, emotional disturbance, orthopedic or other
health impairment, autism, traumatic brain injury or specific learning
disabilities." (ORS 343.035(1))
Used to determine eligibility for special education services in public
schools.
Oregon State
Health Service epidemiologists use the CDC definitions based on ICD-9-CM codes
for hospitalizations and ICD-10 codes for fatalities. The codes used to
define TBI hospitalizations are N Codes 800.0-801.9, 803.0-804.9, 850.0-854.1,
959.01. The codes used to define fatal TBI are S01.0-01.9, S02.0-02.1,S02.3, S02.7-02.9, S06.0-S06.9, S07.0, S07.1, S07.8, S07.9,
S09.7-S09.9, T01.0, T02.0, T04.0, T06.0, T90.1, T90.2, T90.4, T90.5, T90.8,
T90.9.
The definition
is used to determine TBI cases in
11. How is developmental disabilities
defined in your state? The following is from an arc web page. Should be
replaced with statutory
reference:
Development Disability means a disability attributable to mental
retardation, autism, cerebral palsy, epilepsy, or other neurological
handicapping condition that requires training or support similar to that
required by individuals with mental retardation, and the disability:
Originates
before the individual attains the age of 22 years, except that in the case of
mental retardation the condition must be manifested before the age of 18; and
Has continued,
or can be expected to continue, indefinitely; and
Constitutes a
substantial handicap to the ability of the person to function
in society; or
Results in significant subaverage general
intellectual functioning with concurrent deficits in adaptive behavior that are
manifested during the developmental period. Individuals
of borderline intelligence may be considered to have mental retardation if
there is also serious impairment of adaptive behavior.
Definitions
and classifications shall be consistent with the "Manual of Terminology
Classification in Mental Retardation" by the American Association on
Mental Deficiency, 1977 Revision. Mental retardation is synonymous with mental
deficiency.
12. Is
this definition in statute? No
13. If
so, what is the citation?
Research
Assistant Notes: Mental Retardation in defined in ORS. Developlemental Disabilities is not.
Incidence
14. Does
your state have any of the following systems for collecting data?
Trauma
Registry Yes
TBI Registry
No
TBI
Surveillance system No
Other
(Indicate: Hospital Discharge Database) Yes
15. If
your state has a TBI registry, is it population based? NA
(i.e., does it
include information for all cases in the state, not just those from
selected hospitals or facilities? CDC-funded TBI surveillance is
population-based).
16. If
your state has a TBI registry, is it established in statute? NA
17. If
so what is the citation?
18. Is
reporting mandatory? NA
19. Is
the mandatory reporting enforced? NA
20.
Where (or to whom) is the data reported?
21. If
you have a TBI registry, does it include follow-up contact? NA
22. If
so, when are people contacted?
In Hospital NA
3 months post
injury NA
6 months post
injury NA
12 months post
injury NA
23. What
information do you obtain or provide in the follow-up contact?
24. CDC
recommends the following codes for surveillance using ICD-coded data systems:
800.0-801.9 Fracture
of the vault or base of the skull
803.0-804.9 Other
and unqualified and multiple fractures of the skull
850.0-854.1 Intracranial
injury, including concussion, contusion, laceration and hemorrhage
959.01 Head injury,
unspecified (as of
Does your
state capture any others?
No
25. If
so, what are they?
Research
Assistant Notes:
General Revenue Funding
26. Does
your state allocate general revenue funds for TBI-specific programs and
services? No (If no, skip to Question
33)
27. If
so, what year did allocations begin?
28. If
so, how much was allocated, and to which agencies, in the most recent fiscal
year for which data is available?
Year:
Planning/Policy
$ Agencies:
Prevention
$ Agencies:
Registry $ Agencies:
Research $ Agencies:
Services
(direct, purchase) $ Agencies:
Other (specify ) $ Agencies:
TOTAL $
29. What
are the eligibility criteria for persons receiving services from general
revenue sources?
Diagnosis
Age
Assets/Income
Years post
injury
Other (specify: )
30. How
many persons were served?
Year:
Information/Referral #
Service
Coordination/Case Management #
Services (therapies, day programs, etc.) #
Other (specify ) #
TOTAL #
31. Has
your state used tobacco settlements for TBI-specific programs and services?
Yes No
32. If
so, please list the programs and services:
Research
Assistant Notes:
Trust Fund Funding
33. Does
your state have a trust fund? No (If
no, skip to Question 42)
34. What
agency administers the fund?
35. Is the fund TBI or TBI plus (i.e., another disability such
as spinal cord injury)? TBI TBI+
36. When
was it created?
37. How
is it funded?
38. What
is the statute citation?
39. How
much revenue does the trust fund generate annually? $
40. How
much was allocated in the most recent fiscal year for which data is available?
Year:
Planning/Policy
$
Prevention
$
Registry $
Research $
Services
(direct, purchase) $
Other (specify ) $
TOTAL $
41. What
are the eligibility criteria for persons receiving services from general
revenue sources?
Diagnosis
Age
Assets/Income
Years post
injury
Other (specify: )
42. How
many persons were served?
Year:
Information/Referral #
Service
Coordination/Case Management #
Services (therapies, day programs, etc.) #
Other (specify ) #
TOTAL #
Research
Assistant Notes: Senate Bill 904 to establish a Brain Injury Trust Fund
was introduced during the 2001 Regular Session of the Oregon Legislative
Assembly. The bill did not make it to the floor of the Senate,
however. No state funding source was proposed except for $1 to legally
establish fund. Trust fund would have provided an opportunity to raise monies
from other sources. Patterned after spinal cord injury trust
fund.
Medicaid Waiver Funding
43. Does
your state have a Medicaid Waiver specific to
TBI? No (If no, skip to Q. 45)
44. When
was the TBI Waiver implemented?
45. How
many people were served in the most recent fiscal year? Year:
# Served:
46. Does
your state have other waivers that serve individuals with TBI?
Yes
47. What
type of waiver it is? (aging and disabled; DD,
other) List All: Aging & Disabled
48. How
many people with TBI are served under each type? Information
not available at this time. TBI is often considered to be a
"cause" versus a diagnosis.
Research
Assistant Notes:
Other Funding Streams
49. Does
your state have another source (i.e., no fault insurance) that funds TBI
programs and services? Yes No (If no,
skip to Question )
50. What
agency administers the alternate funding source?
51. When
was the alternate funding source created?
52. If
in statute, what is the citation?
53. How
is it funded?
54. How
much revenue does the alternate source generate annually? $
55. How
much was allocated in the most recent fiscal year for which data is available?
Year:
Planning/Policy
$
Prevention
$
Registry $
Research $
Services
(direct, purchase) $
Other (specify ) $
TOTAL $
56. What
are the eligibility criteria for persons receiving services from general
revenue sources?
Diagnosis
Age
Assets/Income
Years post
injury
Other (specify: )
57. How
many persons were served?
Year:
Information/Referral #
Service
Coordination/Case Management #
Services (therapies, day programs, etc.) #
Other (specify ) #
TOTAL #
Research
Assistant Notes:
Services & Supports
58.
States make a variety of services and supports available to individuals with
brain injury and their families. For each item, please indicate what your
state calls that service/support, when in the in the recovery process the
service is available (medical/acute or social/community integration or both)
and the funding source(s).
|
Services
& Supports |
Med |
Soc |
State Med Plan |
TBI Waiver |
Other Waiver |
Trust Fund |
Gen Rev |
Other (Specify) |
|
Assessment/Evaluation |
X |
X |
X |
|
X |
|
|
Aging
and Disabled |
|
Assisted Living |
|
X |
|
|
X |
|
|
|
|
Assistive
Technology Devices |
X |
X |
X |
|
X |
|
|
|
|
Behavioral
Programs/ Services |
X |
|
X |
|
|
|
|
|
|
Case
Management/Service Coordination |
|
X |
|
|
X |
|
|
|
|
Community &
Family Education |
|
X |
|
|
|