Task C ~ Registry and Surveillance Program

1. Review current availability of data on TBI in Oregon

2. Review registry and surveillance programs in other states and source of funding

3. Identify costs and benefits of a registry and surveillance program

Task Leader: Melvin A. Kohn

Task C Materials/Background info and examples from other states and agencies-in binder

1. Draft workplan for Task C

2. Support letter for Oregon Health Division proposal for Traumatic Brain Injury Surveillance project

3. Traumatic Brain and Spinal Cord Injury registry information/article ~ HR4365 background

4. TBI Registry and Surveillance Systems info ~ from Centers for Disease Control and Prevention http://www.cdc.gov/ncipc/dacrrdp/tbi.htm

Maternal and Child Health Bureau http://www.mchb.hrsa.gov/needs.doc

TBI prevalence and other important facts, from the Brain Injury Association. http://www.biausa.org

Trauma Registries & Surveillance Systems (Overview) TBI_registries_overview.htm

5. Statewide TBI Surveillance Programs by state Registry_Surveillance_Programbystate.htm

6. U.S. Department of Health and Human Services Administration Health Status Report ~ Multnomah County, Oregon ~ July 2000

7. Census data ~ Population Estimates and Demographic Components of Population Change: April 1990 – July 1999

8. Connecticut - TBI Registry

9. Iowa Initiative for a Statewide Service Delivery System for Persons with Brain Injury

10. Louisiana 1996 Annual Surveillance Report on Traumatic Brain and Spinal Cord Injury

11. Special Report: Traumatic Brain and Spinal Cord injury Associated with ATV Use ~ Louisiana 1996

12. Minnesota - registry information

13. Minnesota report: Using data to Improve TBI Services

14. New Jersey 1994 report on TBI

15. Listing of additional resources available via internet

Supporting Information Links:

The Epidemiology of Traumatic Brain Injury Among Children and Adolescents http://www.nichd.nih.gov/publications/pubs/traumatic/Appendix_B.htm

CDC Epidemiology Report: Traumatic Brain Injury Incidence: Morbidity and Mortality

cdc_epidemiology_report.htm

CDC State by State Incidence Report for 2000 cdc_state_report_2000.htm

Report Of The Consensus Development Panel On Rehabilitation Of Persons With Traumatic Brain Injury October 26–28, 1998 RehadTBI.html

Evidence Report on Rehabilitation of Persons with Traumatic Brain Injury By Randall M. Chesnut, MD, et al., Oregon Health Sciences University

OHSU RehabEvidenceRptOHSU98.pdf

Traumatic Brain Injury in the United States: A Report to Congress: Executive Summary Center for Neuro Skills

http://www.neuroskills.com/index.html?main=tbi/congexecsumm.shtml

Traumatic Brain Injury Model Systems (funded by the National Institute on Disability and Rehabilitation Research) http://www.tbims.org